Tuesday, December 3, 2013

Making Great Progress with the NAM!

Happy December, everyone! I hope you all had a wonderful Thanksgiving. We had 2, one for each side of the family, and both were fantastic. We have so much to be thankful for this year, and I'm particularly grateful for the amazing care Will is receiving from the NYU cleft team. I cannot believe Christmas is only a few weeks away... which also means that I only have a few weeks left of my maternity leave before I go back to work on Jan 6 - where has the time gone?!! It's been a little more than a month since I last posted (wow!), so I thought it was about time for me to share an update on how things are going. Will has been wearing the NAM for about 8 weeks now, and I am just amazed at the incredible progress he has made with it. Even his ortho is impressed with how well he's responding to the treatment, to the point where we are actually going to move up his first surgery (which will be to repair his lip) by a few weeks! We don't have an exact date yet, but it looks like it will be mid-February. I am both eager and completely dreading that surgery - I absolutely adore his little face and beautiful smile just the way it is and I am having a hard time picturing what he will look like with his new smile, but I know we will love it just as much. Not to mention I already know I'm going to completely break down and lose it when they take him out of my arms to bring him back into surgery. Tearing up now just writing this, so we'll change the subject! Here's a collage of Will's progress with the NAM after the wearing it for the number of weeks I indicate in the picture. So crazy!

As far as Will's life outside of his cleft, he's had a lot of exciting accomplishments in the past few weeks and it's been so fun to watch him grow and become more interactive with the world. He started "talking" with coo's and ah's around 4 weeks old, smiling at 5 weeks old, gave us his first laughs at 8 weeks old (which is pretty early!), and was even consistently sleeping through the night at 8 weeks old too (he goes to bed at 7:30p just like his sister, and it's SO NICE to have a couple of kid-free hours each night to relax and unwind!!). He absolutely loves mobiles and will lie there watching it go round and round, talking and kicking away at it. On the flip side, he has hated bath time and tummy time from day 1, and still hates those. Can't win 'em all. As far as bottles go, we determined that unfortunately there is no magic answer - he's just a fussy eater sometimes. We tried Zantac for reflux, gas drops (multiple brands), gripe water, probiotics, switched to sensitive formula and nothing made a difference. Then we tried a few different nipples for his bottles and found one that he seems to prefer, and with those he does better (although every once in awhile we still get a meltdown). But it's definitely better than it was before, which I'm sure is a combination of the nipples, him maturing, and us getting better at managing when he's fussy before it turns into a meltdown. Either way, he's a much more content baby than he was a month ago, so we are immensely thankful for that! And with all that stuff going on in his mouth, I guess I can't blame him for being fussy when he eats sometimes!

So that's our update. We're excited for Christmas and are eager to watch Will achieve more firsts!! So until next time - enjoy your December and Happy Holidays!!

1 comment:

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