Thankfully, this time around, the nurse on the team, Pat, pulled some strings to ensure we weren't stuck in the 4 baby room again overnight so we had a normal 2 patient room. It was uncomfortable, but 1000 times better than the last surgery. Will didn't want to sleep unless he was held, so I spent the night on the reclining chair with Will in my arms, and we managed to get a few hours of sleep together that way. It wasn't great, but it was no where near as bad as I expected it to be. And he continued to drink throughout the night, so we knew we would be discharged first thing in the am.
Since being home, Will has just amazed me with how he has handled this recovery. It's been so much better than the first surgery. By day 2, we had smiles and even some laughs, and day 3 I had him back on his regular nap schedule! And once he figured out how to crawl and cruise with the arm restraints on, he was a much happier baby. He does still wake a few times a night - at first it was for meds, but now I think he's just mostly uncomfortable because of the damn no no's. We are still struggling to get him to drink enough fluids as he really just seems uninterested in anything liquid at all, but he's getting at least the minimum to keep him hydrated and I know eventually he'll come around (I hope anyway)!! But all in all, I cannot complain, and in fact I'm still pinching myself at how well he's doing. At 1 week and a day post op, it almost still feels unreal that we actually made it to this point already, but boy does it feel good! Here's Will a few days post op:
We have a follow-up appointment with Dr. Warren at 3 weeks post op. If everything looks good at that appointment, we should be cleared and surgery free until he's about 7 or 8 years old (and possibly even later)!!! So please cross your fingers for us friends, as that would just be amazing news for us to receive. But for now, it's time to help Will continue to heal, and of course - plan for his FIRST BIRTHDAY that is just THREE days away!! Wow - what a year it's been and I wouldn't change it for anything.